A (somewhat primitive) understanding of tinnitus

When consulting a dictionary, tinnitus is defined as “ringing or buzzing in the ears”. Upon further reading and also personal experience, I can tell you that there is also wooshing and humming. Tinnitus can even seem like a familiar tune or song – this is referred to as a “musical hallucination” – which sounds somewhat blissful.

The most common cause for tinnitus is noise induced hearing loss. My tinnitus was caused by damage due to a virus in my inner ear. This virus caused permanent damage to the sound sensitive cells of the cochlea. It is therefore important to note that tinnitus is not a disease but a symptom.

I was introduced to “tinnitus maskers” when I went for my first hearing test. These are tools that help the brain ignore the specific tinnitus frequency.

The literature also refers to “tinnitus retraining therapy” and this is currently where my reading is focused. Please note that I am by no stretch of the imagination a medical specialist, but it was explained to me as follows: The damage to the cells causes a lack of stimulation within those specific frequencies, because these frequencies are no longer heard. The brain gets irritated and consequently creates those sounds on its own. Again a wonderful mechanism that echoes just how wonderfully the human body was put together!

The solution provided to me for my tinnitus (that is only present in the one ear), was fractal tones, or fractal music. This sounds like music one would hear in a spa… somewhat undefined, totally unfamiliar. Fractal music is generated in such a way that the order of the melody never repeats, there is therefore no pattern and the brain cannot familiarise itself with the sound. It will never be an earworm, and you will never be able to sing along. It is because of this lack of recognition that it works as a masking technique. The brain can later simply move it to the background and even ignore it.

It also has additional properties in that it has a calming effect and aids with concentration and focus.

My hearing aid generates this music. Various programmes named lilac and sea breeze and other such pretentious phrases.  I am making an effort to use the music when I struggle to calm my thoughts at night, or when I am concentrating on a project at work and I have experienced some of the positive effects. I am documenting these in my journal and hope to provide a sort of case study after I have used it for a while.

Gratitude

Sometimes one has to share something that speaks of gratitude. Realising something about humility and that at the end of the day things tend to happen without our control or input. Not because I am deserving of anything but because of grace.

When I wrote this I had had my hearing aid for one month, 30 days. I am 36 years old. And I couldn’t believe how big an issue something so small could be for me! (Vain much??). My hearing loss is something that I have been aware of for a long time but was only now forced to address it due to various vestibular and balance issues. I have to admit that I was disappointed and even ashamed of this new official confirmation that I am in fact hard of hearing. But this whole experience has left me dumbfounded with gratitude. It has also taught me how my attitude can change my outlook on things.

Those of you who know me are well aware of my stupid baby ears. My grommets, my shingles. Stick out ears. And I am sure that as soon as you heard that I had gotten a hearing aid, you had nodded to yourselves and said “I have been saying for a long time that she doesn’t hear me”. But I actually do not want to talk about my hearing aid at all, but more about the fact that the perfect people come across our paths at the perfect time. And not only were these the perfect people but they were also prepared with the perfect attitude and advice.

My ENT, where I have frequent flyer miles, referred me to the audiologist for a full hearing screening where I was diagnosed with hearing loss of 20dB in my left ear as well as tinnitus. She took a look at my manicure colours and said “Usually I tell people that you won’t even see it. But in your case I’ll just tell you we can make it any colour you want it to be.” I was amased at all the tests included in a hearing screening and the exact mapping that goes on for the frequency definition.

So I got issued with a blue hearing aid that is small, sleek and modern, one that includes fractal music (ZEN) for the tinnitus. It has various channels for my exact hearing needs and I can control all of this with my phone. So I can now hear rather than guess.

I am grateful for a medical aid. I am grateful for a husband who keeps saying that it is exactly like glasses. And I am especially grateful for a God who just confirmed again that I worry too much and that everything is planned and sorted before I even knew that it was a problem. May you all have a weekend where you are not only blinded by the things that are wrong or negative, broken or ugly. May you rather see everything that has fallen into place, has been fixed or addressed in some way while you weren’t even looking. And may all these things leave you grateful. Because a small bit of gratitude will always lead to more.

About the writer, author, friend…

The title

Tonotopic refers to the “anatomic organisation by which specific sound frequencies are received by specific receptors in the inner ear with nerve impulses traveling along selected pathways to specific sites in the brain” (Miriam Webster).

If we split the word into its’ different parts, topic comes from the Greek word topos, meaning place. Tonotopic can thus be simplified as “the place of tones”. This place can refer to where the sound is received, transmitted or perceived, which is the cochlea or the auditory cortex – the part of the brain that receives and interprets sound.

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